Off Tubes and Feeling Fine

On Saturday we got a room in the Ronald McDonald House. Since I'd slept with Jamie Thursday and Friday (while Michael slept in another room in the hospital) and didn't get more than a few hours each night, Michael insisted I sleep in the RMH that night. After that we switched off. Jamie had some bleeding through his NG tube. They say that happens when it's on continuous suction because it'll grab part of the stomach sometimes and cause it to bleed.



On Sunday, his pain was a lot better. He still had to have his meds on time, the morphine every 3 hours and the Tordal every 8. He was a bit more awake, but seemed unhappy and bored. I it occurred to me to play with him, and he played a little. It made him very very happy. And the nurse brought him a stacked rings toy that lights up when you up the rings on the pole (whatever that thing is called). He didn't smile or laugh, but he was happier. Respiration Therapy puts him to sleep and makes his coughs more productive. He had another bleed in his NG tube. I just hate that. Blood should stay in the body. Oh, and he tried to pull out his NG tube. I don't know what came over me, but the moment I saw him grabbing it, and it was out about an inch or so,I just pushed it back in. And then I wondered, "what was I thinking?" I just shoved a tube back in his body, and did I hit anything? Well the nurse came and checked it out and it was fine. And the doctor said the next day that that's all they would've done, and I should sign up for nursing school. :) We went to mass at one of the chapels and the priest was wonderful! He gave a moving sermon about looking to the cross (or crucifix) and giving up our burdens to God and looking at it not as a sign of suffering (as in Jesus' Suffering, or a symbol of our own suffering) but as a sign of Victory. It's a sign of Jesus' Victory over death, Victory over Sin, and it's a sign of our victory over death and sin and suffering and faith in God. It was something I needed to hear.




On Monday, he smiled! The priest who gave the sermon on Sunday came over and performed the Sacrement of Healing on Jamie. In case you're wondering, it's not "Last Rites", it's for anyone in need of healing. Just because it's also given as the last of all the rites doesn't make it only for the dying. He played a bit more, and during one such time, he looked over at the crib toy and smiled briefly. Such a beautiful sight! Later in the day, he even tried to laugh. He was allowed to have water in small amounts, and managed it no problem. He got a fever late at night and they gave him a Tylenol suppository which took care of it. They also did blood work to see if he had an infection either locally or generally. (The preliminary cultures came back today and so far nothing. The doctor, Karen West who is just fantastic, said it's likely a hormonal response to his labored shallow breathing.) He was also able to go up to 4 hours sometimes before needing his meds. His x-ray came back looking pretty good. His heart had moved over into pretty much the center of his chest. The left side is still thickened, but it looks healthy, as do the lungs. They continued with the Respiration Therapy every 6 hours, which he really enjoyed and his lungs continued to get clearer. He still mostly refused to cough because it hurt to much.



Yesterday, they took out his NG tube early in the morning, and he started playing with Michael right away. Around noon they took out his chest tube. And we got to hold him! It was the first time since I handed him to the surgical nurse for surgery, and it was wonderful! It was an even happier moment than when I held him after he was born. And he tried to stand up and move around, and was much more active and alert and didn't cry every time he moved or was moved. And with those tubes out, we didn't have to make him wear those no-nose arm guards to keep him from trying to pull out the NG tube. And I put a new sleeper on him. Much better than the hospital gown! He had more x-rays, before and after they pulled the chest tube, and everything looked good. No noticeable improvement over the previous day's x-rays, but he still looks good. The lungs looked inflated.

Today, he went as long as 9.5 hours between morphine doses! He's having a much better time with the pain, but now that he can move around and we can hold him and play with him more he gets a little sore from it. They also said he could have soft food, starting slow. He's tolerated it pretty well. The doctor said they might send him home tomorrow! Seriously! Tomorrow! We are a happy family. :) He's also back to flirting with people. It's been several months since he did that! Happy happy day!